After catching the flu in August it’s fair to say that my little lungs never really recovered from it. After a very rough Christmas and new year both my lung function and weight dropped concerningly low and my Dr suggested that it’s time we looked at a transplant. . I would be lying if I didn’t say that I (and probably my family) had moments where I thought that the year 2020 would be my last. An overwhelming amount of fear resulted in me irrationally crying on my dads shoulder telling him that “I wasn’t ready to die yet”.
That being said he also mentioned a drug that had recently been approved in the US that he was going to try and get for me. Keep in mind my family and I had heard rumblings about this drug already. It was the next best thing to a cure and had been 10 years in the making.
Low and behold after an excruciatingly long 5 week hospital admission of not being able to breathe, walk or eat properly I was given my little pills of hope.
Thus I present to you a new Laura! Within 4 hours of starting my cough was loose. Within 4 days I was breathing easier. And now 2 weeks on I cannot only laugh until I cry but I can also breathe in deep! Something I haven’t been able to do since before my birthday last year! There are no words to describe the feeling of taking a deep breath, stretching parts of your lungs that you thought were long dead and having newly found oxygen travel throughout your body. I am so eternally grateful to vertex Pharmaceuticals, the Alfred hospital and of course my big beautiful family who have been there every step of the way.
Cheers to a future that I can now see.